My Story

Hi there, welcome to my blog. Yes I am a drama queen and yes I have been deemed “infertile” by a few of the medical experts in the great State of Colorado but that hasn’t made me give up my quest to have children quite yet. My husband and I have been on the emotional roller coaster of infertility since March of 2009 when I stopped taking birth control after being on it for ten straight years. I have been keeping a journal since the start of this process and thought I would share it with all of the other incredible women out there who may be going through the same thing or similar thing that I am. At age 28, I have been diagnosed with Premature Ovarian Failure (POF). With no history of fertility problems on either side of my family and normal periods before going on the pill, I was left to accept that I have this condition and that there is no medical explanation for it. Since receiving this diagnosis from a fertility specialist in May 2009, I decided I simply wasn’t going to accept that I wasn’t going to have children with my own eggs. I jumped into the world of Eastern Medicine, worked with an Endocrinologist and even went on a fertility diet trying to get my ovaries to start functioning normally. The conclusion I have come to is this…..having Celiac Disease (Gluten/Flour intolerance) and continuing to eat flour throughout most of my childhood and part of adulthood caused my body to produce anti-bodies that have now started attacking the organs/glands in my body. After a visit to an endocrinologist in December 2009, it was determined that I have ovarian antibodies which are essentially antibodies produced by my body that only attack the endocrine system. No doctor has actually confirmed my self diagnosis that the Gluten Intolerance caused this but Celiac Disease is an auto immune disorder and any auto immune disorder can cause your body to attack itself. I am currently waiting to see a Reproductive Endocrinologist to see what the next steps for me will be. I have read that doctors can try and stimulate the Pituitary Gland to get your Endocrine System running again or that you can be given steroids to help restore ovary function. I am hoping to receive one of these treatments in the near future but only time will tell. In the past 10 months, I have watched many of my close friends become pregnant while I remain a sad statistic. This blog contains my thoughts as I struggle through the process of figuring out what in the world is going on with my body and how I continue to try to stay upbeat and positive about my fertility and enjoy my life. I hope that my blog can help others would love to hear from other women going through the same thing, inspiring stories or anyone who just needs encouragement. I know and understand how difficult every day can be once you have received the POF or infertile diagnosis and want you all to know that I am here for you. Please note that some of you may feel I am sharing to much information (TMI) and for that I am sorry. If you want to read my blog…you get all the details. You never know what will be helpful to someone else right? God bless everyone and I wish you luck on your fertility adventures:0) Remember mind over matter!

My intent is to raise awareness of the issues. Please do not rely on this or any other article when making decisions that will affect you and your health. These are things I have decided to try after much research.
I am sorry I have to even ask, but this research stuff is starting to get expensive. I am just asking for $1.00 donation for posts you feel have helped you. I will use all donations to help fund my research and doctors appointments and of course report back to you. Baby dust to all of you and dont worry we will all find a way to have children.

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Infertile – a horrible word used to make women who are already feeling bad about themselves want to jump into a pool of chocolate fudge and eat their sorrows away only to realize that not only can they not get pregnant but now they don’t fit in their clothes. A word so easily tossed around by doctors that they don’t even realize they are saying it and a word that you never under any circumstances should google unless you want your brain to explode.

Sunday, September 19, 2010

On a Break.....Or am I?

I am usually not one who believes in taking "breaks", at least when it comes to relationships. I like many others have been fed that line several times and in my opinion if someone feels the need to spend less time with me then maybe they dont need me in their lives at opinoin on breaks has changed since my dianosis. I temporarily take breaks when I feel overwhelemed. Lately I have felt like my constant need to be researching and have my head buried inside a book is spinning out of control. I am also getting very tired of attending doctros appointments and eating super healthy to not see the improvements I am wanting and gaining weight. I have decided to stop taking most of the supplements continuing to take my liquid form of royal jelly and maca powder with my juice in the morining, my probiotics and my iron supplement.  I am going to take a break from cleansing, accupuncture and try more yoga and working out.  I need a break!!! Sorry Mr. Library, but you and I were getting to serious way to fast and my husband is getting jealous. I do want to share my latest self diagnosis with you.  My husband and I recently attended a college football tailgate and game. At the tailgate, I caught up with a friend who I hadnt seen in awhile and to my surprise, she mentioned that she had gone off the pill a littel over a year ago and that she too was having ovulation problems.  My heart dropped as she explained how painful it had been for her and her husband and that she was so tired of all the different kinds of doctors.  Next she explained that she had recently started seeing a chiropractor who was also a natural doctor and that he has recently diagnosed her with a gall bladder problem and had given her some supplements.  We decided that we would have lunch soon and talk about our experiences and see if we might be able to help eachother some time in the upcoming weeks and then went off to enjoy the game. That night while I sat on the couch I was thinking about what my friend had said and decided to start googling gall bladder issues and fertility. To my surprise, I found a link between the two and also found a link between the kidney and the gall bladder.  I called my mom and told her what I had been reading and then she mentioned a friend of hers that had been on Yasmin (the same pill I was on for over 6 years) and had to have her gall bladder removed.  I told her that I had to go do more research and as I scrolled through page after page of information, I realized that maybe my issues could be related to my gall bladder.  Fatigue, hot flashes, black pepper like flakes in urine, sharp pains in the upper right name only a few. I am still convinced that my thyroid is also part of the problem and have read a lot of material that states that just because you are in the "normal" range of .5-5.5 that doesnt mean that range is right for you.  My thyroid was at a .3 on my last blood test.  Below is a list of Symptoms related to thryoid problems that I fall under:
Family history of thyroid problems (my uncle and my grnadmother)
Past history of auto-immune disease (celiacs)
Allergies or sensitivity to gluten
Other pituitary or endocrine diseases (diabetes, PCOS, premature menopause)
Chronic Fatigue
Celiac disease/gluten intolerance
Heavy consumer of soy products
Heave consumer of raw foods
Heart palpitations
Sweating more then usual/feeling hot when others are not
Inappropriate weight gain despite changes in diet and excercise
Hair loss
Itching skin
Abnormally low sex drive (yes I know you may not want to know that...sorry)
Unexplained infertility
Periods have stopped
Constipation (yes I know sorry another overshare)
Shortness of breath
Difficulty falling asleep

and there you have extremely long list of symtoms I currently have...hmmm I think I need to keep reading my new thyroid book......ok so I am taking a break from reading more then one book at a time. I will focus on one at a time so it doesnt seem so overwhelming. That should be easier to keep under control.

1 comment:

  1. Thank you for those informations. There are lots of resources to get more information about these and most can be found online.


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Reading Materials/Other Items That Have Helped Me

  • Inconceivable
  • Making Babies by Sami S. David, MD & Jill Blakeway, LAc
  • pre-seed Fertility-friendly Intimate Moisturizer
  • restoring fertility - yoga for optimal fertility dvd - you can feel it working!
  • Taking Charge for Your Fertility by Toni Weschler, MPH
  • The Infertility Cure by Randin Lewis, Ph. D.